FAMOUS PEOPLE WITH HYPERMOBILITY?

Cherylee Houston

Actress Cherylee Houston has hEDS (Hypermobile EDS) and uses a wheelchair.

She made history by becoming Coronation Street’s first full-time disabled actress.

https://clairehasehlersdanlos.files.wordpress.com/2015/02/09387-mirror-image-1-395600068.jpg

Nicola Blackwood MP08om02nic.jpg-pwrt3
(From Oxford Mail, 31.4.15)

NICOLA Blackwood has revealed she has been battling with a genetic condition for years but believes it has not affected her performance as a politician.

The Conservative prospective parliamentary candidate for Oxford West & Abingdon spoke to the Oxford Mail yesterday for the first time about being diagnosed with a genetic joint mobility syndrome called EhlersDanlos (EDS) in 2013.

The condition affects tissue in skin, ligaments, blood vessels and internal organs and bones.  It is known as an invisible illness because the symptoms are often not physically visible and about 57 per cent of patients wait more than 10 years for a diagnosis.

As a result of her EDS, she has since been diagnosed with postural tachycardia syndrome (PoTS), an an abnormality of the autonomic nervous system affecting blood pressure and heart rate…….Miss Blackwood said: “It’s been a long, rocky road to diagnosis but the NHS has been fantastic in helping me get on top of this.

“I’m lucky I don’t face life-threatening complications like some EDS patients; in fact I’ve found that it’s been the simplest things like eating a high salt diet and pilates that have made the biggest difference. “Now I can go into the election without any uncertainty, in control of my health, and trust that my constituents will see from my record how much I love representing them and my home constituency, and let me finish the job I’ve started.”

As a child, Miss Blackwood had asthma and was diagnosed with ME at the age of 15, becoming housebound by the time she was 17. It interrupted her A-Levels and she had to be home-schooled.  But having been trained as a classical singer at Trinity College of Music from the age of 14, she went on to gain a first in music at St Anne’s College and an M.Phil in musicology from Emmanuel College, Cambridge.

She said she was able to get on top of the ME but in 2011 her health began deteriorating and in September 2013 she was diagnosed with EDS.  Despite receiving treatment, Miss Blackwood said she still had problems with her health and it was not until last August that she was diagnosed with the secondary condition PoTS.

She said she has altered her lifestyle to cope with the conditions including changes to her diet, doing pilates and physiotherapy, as well as taking medication.  She has to have 32 injections in her head every 10 to 12 weeks to help her migraines.

But she said it has not affected her job as an MP and added: “Even while I have been going through the process of getting diagnosed and learning how to manage the condition, I have been a marginal seat MP representing my constituents here in Oxford including major campaigns for A34 funding and flood defences…so I am even more confident now I have it under control.”

4 thoughts on “FAMOUS PEOPLE WITH HYPERMOBILITY?

  1. This is an extremely damaging post to people with EDS. 20% of people have hypermobility. And it doesn’t cause issues and it’s not from EDS. Having hypermobile elbows is so extremely common. And now people might come across this and think they have EDS, which is worrisome for them and makes EDS seem like an absolute joke

    Like

    • Dear Olivia,

      Please forgive me for not replying sooner. Yes, you’re probably right. I put this on my site a few years ago, and so many things have changed since then. I think I should take it off. Bear with me and I’ll try to. Thanks for pointing it out. Take care, Claire

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s