Elizabeth Taylor

Elizabeth Taylor did she have eds

She made history by becoming Coronation Street’s first full-time disabled actress.

NICOLA Blackwood has revealed she has been battling with a genetic condition for years but believes it has not affected her performance as a politician.

The Conservative prospective parliamentary candidate for Oxford West & Abingdon spoke to the Oxford Mail yesterday for the first time about being diagnosed with a genetic joint mobility syndrome called EhlersDanlos (EDS) in 2013.

The condition affects tissue in skin, ligaments, blood vessels and internal organs and bones.  It is known as an invisible illness because the symptoms are often not physically visible and about 57 per cent of patients wait more than 10 years for a diagnosis.

As a result of her EDS, she has since been diagnosed with postural tachycardia syndrome (PoTS), an an abnormality of the autonomic nervous system affecting blood pressure and heart rate…….Miss Blackwood said: “It’s been a long, rocky road to diagnosis but the NHS has been fantastic in helping me get on top of this.

“I’m lucky I don’t face life-threatening complications like some EDS patients; in fact I’ve found that it’s been the simplest things like eating a high salt diet and pilates that have made the biggest difference. “Now I can go into the election without any uncertainty, in control of my health, and trust that my constituents will see from my record how much I love representing them and my home constituency, and let me finish the job I’ve started.”

As a child, Miss Blackwood had asthma and was diagnosed with ME at the age of 15, becoming housebound by the time she was 17. It interrupted her A-Levels and she had to be home-schooled.  But having been trained as a classical singer at Trinity College of Music from the age of 14, she went on to gain a first in music at St Anne’s College and an M.Phil in musicology from Emmanuel College, Cambridge.

She said she was able to get on top of the ME but in 2011 her health began deteriorating and in September 2013 she was diagnosed with EDS.  Despite receiving treatment, Miss Blackwood said she still had problems with her health and it was not until last August that she was diagnosed with the secondary condition PoTS.

She said she has altered her lifestyle to cope with the conditions including changes to her diet, doing pilates and physiotherapy, as well as taking medication.  She has to have 32 injections in her head every 10 to 12 weeks to help her migraines.

But she said it has not affected her job as an MP and added: “Even while I have been going through the process of getting diagnosed and learning how to manage the condition, I have been a marginal seat MP representing my constituents here in Oxford including major campaigns for A34 funding and flood defences…so I am even more confident now I have it under control.”