It would be great if we could have a clear diagnostic test for the faulty genes in connective tissue disorders.   Some such tests do exist for the extremely serious forms of EDS (eg Ehlers-Danlos Vascular, Type IV), but unfortunately not for the Ehlers-Danlos Type III which I have.  But there are a few clinical ways in which EDS may be diagnosed.  Try the following two tests:


Hypermobility is diagnosed if you can score at least 4 points on the Beighton scale, although this does not show the particular type of EDS you may have.  Remember also that some people may score highly, but have excellent core stability in their bodies and no pain.  Such people are hypermobile, but do not have EDS.  EDS involves joint hypermobility and painful symptoms.

In the Brighton test EDS is diagnosed if there are:

two major criteria or
one major and two minor criteria or
four minor criteria.
Two minor criteria will be enough where there is an unequivocally affected first-degree relative.
(cf Hypermobility, Fibromyalgia and Chronic Pain, eds. AJ Hakim, R Keer, R Grahame, Elsevier, 2010, p. 4.)
If you think you might have, then feel free to download and print out the ten-page form I’ve created.  You’ll find it under WHAT WILL MY DOCTOR THINK?

2 thoughts on “MIGHT I BE HYPERMOBILE?

  1. Hello Claire! My name is Nicole and I am a fellow zebra and chronic pain movement coach. I was digging into research on Hypermobility movement and happened to reach your Might I be Hypermobile post on your website. Thank you for your information!

    I wrote a piece on this called How is Ehlers Danlos Syndrome Diagnosed. It might be a great resource to mention on your blog. If you’re interested in checking it out, here’s a link: https://nicolechuba.com/health/how-is-ehlers-danlos-syndrome-diagnosed/.

    Anyways, just wanted to reach out and let you know your piece on Hypermobility and your comorbidity pieces definitely provided me with some new tips for me to try out for myself – so thanks! I would love to exchange some links in the future! Feel free to reach out to me at contact@nicolechuba.com.

    It’s always great to meet another passionate zebra! Hope to connect soon!



    • Dear Nicole,

      Please forgive my late reply to your kind comment. I’ve looked at your wonderful site. I’m afraid I haven’t updated mine for far too long, but yours is fantastic! I’m interested that you’re a yoga fanatic! EDS UK often tells us that Pilates might be better for us than yoga, since yoga might stretch our already over-bendy bodies, whereas Pilates builds up core strength. But I don’t know – you obviously find the yoga helpful. Good for you. I do wish you well. We need all the help and support we need! Take care, Claire


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