People with EDS who suffer from light-headedness, dizziness, chronic fatigue, cold extremities, racing hearts, panic attacks, low blook pressure and other symptoms, often may have a click in the heart which is Mitral Valve Prolapse.

This was so called because it was thought to be a problem caused by the mitral valve in the heart, leading to potential heart problems.  This is now thought to be correlation rather than causation, and that the cause is in fact Dysautonomia.

People with Dysautonomia and POTS have low blood volume. The body is not doing its proper job of regulating the blood flow.  The heart shrinks because the blood flow is reduced, but the valve stays the same, causing some flow back because there is no longer a snug fit.  Tiredness and other symptoms are the result.

The good news is that the first aid answer is to drink more water, and eat more salt to aid water retention.

The link below is to an excellent article explaining Mitral Valve Prolapse and its relation to Dysautonomia.

“Dr. Stoll – what is your opinion on this article?”

Things to ask the doctor:

“Pay careful attention to cardiac auscultation and evaluation. The murmur of mitral valve prolapse (particularly in classical and hypermobility types of EDS) should be noted. Perform a baseline echocardiogram, including views of the aortic arch and aorta. Recent studies indicate a risk for thoracic aortic enlargement in patients with classical Type EDS (types I and II). Children with normal results should be reevaluated every 1-2 years and adults every 3-5 years. Any indication of aortic enlargement should be reevaluated every 1-2 years. If mitral valve prolapse is diagnosed, monitoring and screening are indicated to address subacute bacterial endocarditisprecautions.”


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