Those of us with EDS usually have vitamin and mineral deficiencies.  We may be taking in enough, but are sometimes unable to metabolise them properly.
I was told most EDSers have Vitamin D deficiency, so my girls were tested and, sure enough, their Vitamin D levels were extremely low.  We all take high dosages of Vitamin D (10,000 IU per day).  Epsom Salts baths three times a week are a great way to get the Magnesium, though I can’t persuade both my girls to do that yet!
It is worth being tested for the following:
Vitamin D
Vitamin B12
Vitamin C (Can help with blood clotting and the bruising we often suffer with)
Folic Acid
Magnesium (standard blood tests for Magnesium will not reveal the levels since only c. 1% of the body’s Magnesium is in the bloodstream)
There are complex interactions between Magnesium, Vitamin D and Calcium, so we may need careful help on which supplements to take for these.  Also, there are different ways of testing for these things.  Serum testing can be done by a doctor, but testing at the cellular level will need specialists.
An excellent article on Magnesium:
MAGNESIUM AND EHLERS-DANLOS SYNDROME PART TWO: *WHAT* PERSONS WITH EDS NEED TO KNOW ABOUT MAGNESIUM ©2013 Heidi Collins, MD for Michiana Chapter of the Ehlers Danlos National Foundation


  1. I havent been diagnosed with EDS, but info may interest you ..
    You may want to look into your methylation cycle for mutations. I have taken my raw data frim 23andme and ran through Genetic Genie to find the mutations. Folic acid may not benefit you, but methylfolate may do better. Consider the methyl B12 and B6 as well. I have a full mutation for VDRtaq, vitamin D receptor taq and MTHDR C667T. I knew that my vitamin D levels were low. This info filled in the gaps to why. I have a few autoimmune issues and these deficiencies/mutations are part of the picture.
    We recently took in a 5 yr old chihuahua with EDS3 symptoms. I am looking into what can be done nutritionally for her. She loves to chew up and eat orange peels. My guess that feeds into a vitamin C deficiency. . .. plus the other micronutrients found in orange peel and pith.


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